abstract details

The summaries are free for public use. ARTHROS will continue to add and archive summaries of articles deemed relevant to ARTHROS by our Faculty.

"Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes

Author information

Ragouzeos D1, Gandrup J2, Berrean B3, Li J4, Murphy M5, Trupin L6, Yazdany J7, Schmajuk G8. Patient Educ Couns. 2018 Oct 28. pii: S0738-3991(18)30939-X. doi: 10.1016/j.pec.2018.10.016. [Epub ahead of print]

Abstract

Author information 1 SOM Tech, School of Medicine, University of California San Francisco, 654 Minnesota St, San Francisco, CA, 94107, United States. Electronic address: Dana.ragouzeos@ucsf.edu. 2 Division of Rheumatology, University of California San Francisco, San Francisco, CA, United States. Electronic address: julie.gandrup@gmail.com. 3 SOM Tech, School of Medicine, University of California San Francisco, 654 Minnesota St, San Francisco, CA, 94107, United States. Electronic address: beth.berrean@ucsf.edu. 4 Division of Rheumatology, University of California San Francisco, 3333 California Street, Suite 270, San Francisco, CA, 94118, United States. Electronic address: jing.li2@ucsf.edu. 5 UCSF, PRL Institute for Health Policy Studies, 3333 California Street, Suite 265, San Francisco, CA, 94118, United States. Electronic address: Marie.murphy@ucsf.edu. 6 Division of Rheumatology, University of California San Francisco, 3333 California Street, Suite 270, San Francisco, CA, 94118, United States. Electronic address: Laura.trupin@ucsf.edu. 7 Division of Rheumatology, Department of Medicine, University of California San Francisco, 1001 Potrero Ave, San Francisco, CA, 94110, United States. Electronic address: Jinoos.yazdany@ucsf.edu. 8 Division of Rheumatology, University of California San Francisco, Veterans Affairs Medical Center-San Francisco, 4150 Clement St., Mailstop 111R, San Francisco, CA, 94121, United States. Electronic address: Gabriela.schmajuk@ucsf.edu.

Abstract

OBJECTIVE: Use of patient reported outcomes (PROs) in the routine care of rheumatoid arthritis (RA) has been shown to improve health outcomes, However, integration of PROs into the clinical visit is inconsistent. We aimed to develop a "dashboard" for RA patients to display relevant PRO measures for discussion during a routine RA clinical visit.

METHODS: Patients (Nā€‰=ā€‰45) and providers (Nā€‰=ā€‰12) were recruited from rheumatology clinics at a university center and a safety net hospital. Using a human-centered design process involving patients, clinicians, designers, and health-IT experts, we performed interviews, clinic observations, and focus groups, which subsequently guided an iterative phase of prototype testing.

RESULTS: RA patients and their providers shared the goals of assessing wellbeing and developing a personalized treatment plan. We found conflicting views of which data were most important for guiding decision-making and for answering the patient's overarching question of "Am I OK?"

CONCLUSION: The final dashboard simplified the display of PRO data and correlated it longitudinally to the patient's medication regimen. It also included laboratory values relevant for RA care.

PRACTICE IMPLICATIONS: By presenting data graphically, the dashboard may provide a platform for patients and providers to communicate around PROs and shared goals.